UCC Nursing & Midwifery Scholarly Impact Report 2022

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CATHERINE MCAULEY SCHOOL OF NURSING AND MIDWIFERY, UCC

TRANSLATING EVIDENCE & INNOVATION FOR HEALTH

mySupport Study Knowledge Translation and Exchange Symposium After meetingmonthly for over 2 years, onMS teams, themySupport team were finally able to come together in Leiden University Medical Center (LUMC) on the 23 rd of March 2022. This knowledge exchange symposium gave the opportunity for partners to connect and discuss work packages as part of the EU Joint Programme for NeurodegenerativeDisease research fundingaward. Themainaimof mySupport study was to adapt, implement and evaluate the Family Carer Decision Support (FCDS) intervention. This intervention was developed to assist nursing home staff in supporting family carers when they need to make difficult decisions about end-of-life care for their relative with advanced dementia. A sold-out symposium entitled ‘New & Emerging Models of Advance Care Planning for Older Persons’ using hybrid platforms proved to be very successful. Professor Lieve Van den Block gave the keynote presentation on Advanced Care Planning (ACP) in Dementia and shared her views on the wide range of definitions of ACP and few are specific to dementia. Professor Jenny van den Steen shared insight into a new definition of ACP based on a current international Delphi study and Prof Tamara Sussman highlighted the importance of moments and time for ACP-the naturalised ACP process emphasising the need to leverage all opportunities to inform ACP in long term care. We have created a series of audio and video podcasts that reflect key snippets from the symposium, and you can listen and watch individual recordings or listen to the full audio podcast, all resources are available via the https://mysupportstudy.eu/ website under the tab blog and videos.

Website: https://mysupportstudy.eu/end-of-life-care- conversations-reflections-from-mysupport-study- symposium/ Highlights • How to do things in practices can be challenging and making recommendations for improving practice and research in ACP can be found on the mySupport website • Supporting individuals in communicating what matters and comfort care are central to the mySupport study. 2 School of Nursing and Midwifery, Queen’s University Belfast 3 Northridge House Education and Research Centre, St Luke’s Nursing Home, Cork 4 General Practitioner Senior Lecturer, Department of General Practice University College Cork 5 Centre for Gerontology & Rehabilitation, School of Medicine, University College Cork 6 Department of Geriatric Medicine, Mercy University Hospital, Cork 7 Health Professions Education Unit, University College Cork Lead and Team Members Irene Hartigan 1 , Nicola Cornally 1 , Kevin Brazil 2 , Catherine Buckley 3 , Serena Fitzgerald 1 , Tony Foley 4 , Siobhan Fox 5 , Rónán O’Caoimh 6 , Catherine Sweeney 7 , Suzanne Timmons 5 , Alan Connolly 1 , Rene Gonzales 1 1 Catherine McAuley School of Nursing and Midwifery, University College Cork

Delegates and speakers at the mySupport Symposium