UCC School of Nursing and Midwifery Annual Report 2020

Translating Evidence & Innovation for Health

Of Canada; Canada, Sharon Baxter, Canadian Hospice Palliative Care Association; Republic Of Ireland, Karen Charnley, All Ireland Institute Of Hospice And Palliative Care; Czech Republic, Iva Holmerova, Charles University & Alzheimer Europe. Selected References: You can learn more about this study at www.mysupportstudy. eu and follow our progress on Twitter @mysupportstudy . If you would like to sign-up to the mySupport study newsletter, please send a request to: info@mysupportstudy.eu This project is funded by the EU Joint Programme – Neurodegenerative Disease Research (JPND), the largest global research initiative aimed at tackling the challenge of neurodegenerative diseases. JPND aims to increase coordinated investment between participating countries in research aimed at finding causes, developing cures, and identifying appropriate ways to care for those with neurodegenerative diseases - www.jpnd.eu

Hartigan et al., (2020) Communication is key: ensuring effective dissemination of key messages and new knowledge from mySupport study. Engage 12th International Dementia Conference (virtual). O’Connell et al.,(2021) Adapting a Comfort Care Booklet for the Irish nursing home context as part of staff and family caregiver educational intervention across six countries (poster). 20th Annual Research Conference, School of Nursing and Midwifery, UCC. Karolina Vlckovad, Genevieve Thompson, Nicola Cornally, Irene Hartigan, Andrew Harding, Nancy Preston, Catherine Walshe, Emily Cousins, Karen Harrison Dening,, Kay De Vries, Kevin Brazil, Jenny T. van der Steen. Developing Country-specific Questions about End-of-life Care for Nursing Home Residents with Advanced Dementia using the Nominal Group Technique with Family Caregivers . Patient Education and Counseling (under review). The Team: Dr Nicola Cornally (partner lead), Dr Irene Hartigan (co-lead), Dr Serena Fitzgerald (co-investigator), Dr Rónán O’Caoimh (co-investigator), Dr Suzanne Timmons (co-investigator), Dr Catherine Buckley (co-investigator), Dr Siobhan Fox (co-investigator), Dr Tony Foley (co-investigator), Dr Catherine Sweeney (co-investigator). Post-Doctoral Researchers Dr Selena O’Connell. Consortium Partners: United Kingdom, Kevin Brazil, Queen’s University Belfast (Consortium lead), Canada, Sharon Kaasalainen, McMaster University Netherlands, Jenny Van Der Steen, Leiden University Medical Centre, Czech Republic, Martin Loucka, Center For Palliative Care. Collaborators: United Kingdom, Karen Harrison-Dening, Dementia UK; Italy, Paola Di Gulio, University Of Turin; Netherlands, Minke Kooistra, Alzheimer Nederland (Dutch Alzheimer’s Society); Canada, Mary Schulz, Alzheimer Society Publication: Laura Bavelaar, Maria Nicula, Sophie Morris, Sharon Kaasalainen, Wilco P. Achterberg, Martin Loucka,

HIGHLIGHTS

We have produced a booklet providing information to families of people with advanced dementia which is clinically and culturally relevant and context specific for the Republic of Ireland, this together with the online training will now be implemented into two nursing homes over the coming months. Our website contains all the latest information on mySupport Study: http:// mysupportstudy.eu/ . We have a number of interesting blogs which can be found under the ‘News and Events’ tab of the website. We have also developed a video to raise awareness about mySupport Study https:// vimeo.com/513557495/25df83eb33

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