UCC School of Nursing and Midwifery Annual Report 2019

Healthcare Experience, Engagement and Reform

Multiple Perspectives on Self-Management Support for Individuals with Chronic Conditions

Selected References: Byron, C., Cornally, N., Burton, A., & Savage, E. (2019). Challenges of living with and managing inflammatory bowel disease: A meta-synthesis of patients’ experiences. Journal of Clinical Nursing 29 (3-4): 305-319. Macdonald, M., Lang, A., Savage, E., Chappe, V., Murphy, A., Gosse, F., & MacLean, H. (2019). Working to have a normal life with cystic fibrosis in an adherence-driven health care system. Respiratory Care. 64(8):945-952. doi: 10.4187/respcare.06493 O’Connell, S., McCarthy, V. J., & Savage, E. (2019). Self- management support preferences of people with asthma or chronic obstructive pulmonary disease: A systematic review and meta-synthesis of qualitative studies. Chronic illness, 1742395319869443. Sinclair D., Savage E., O Brien, M. et al. (2019) Developing a national undergraduate standardized curriculum for future healthcare professionals on “Making Every Contact Count” for chronic disease prevention in the Republic of Ireland. Journal of

A number of studies are currently underway that capture varying perspectives on self-management support of individuals with chronic conditions. PhD student Selena O Connell is currently exploring patients’ preferences for self-management support using discreet choice experiment. PhD student Clodagh Byron is exploring the help-seeking behaviours of patients with IBD in relation to self- management support. Prof Eileen Savage is exploring the role of health coaching in supported self-management of patients with chronic conditions within health services. The education and preparation of future healthcare professionals for supported self-management is also being explored in an evidence synthesis project. All aforesaid studies are currently underway and some will be completed in 2020/2021. Taken together, these studies will offer new insights into how best to support patients in the management of chronic conditions. The Irish studies are timely given the recent publication from the HSE on Living Well with a Chronic Condition: Framework for Self-Management. The findings will contribute to a better understanding of self-management from patients’ perspectives and how best they can be supported to grow in self-confidence towards optimal self- management with the support of healthcare professionals. The Team: Professor Eileen Savage (Lead), Dr Vera McCarthy, Dr Jennifer Cronly, Ms Dawn Sinclair, Ms Selena Hans Eunjin, Dr Aileen Burton, PhD students (Selena O’Connell, Clodagh Byron). (Note: Dr Cornally is co- supervisor on study by Clodagh Byron).

Interprofessional Care. E-pub ahead of print. doi.org/10.1080/13561820.2019.1684884

HIGHLIGHTS

Our research will inform current reforms and service development on supported self- management for individuals with chronic conditions

Right: Professor Eileen Savage

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