UCC School of Nursing and Midwifery Annual Report 2019

Translating Evidence & Innovation for Health

mySupport - Family Carers Decision Support Study Launches International Website

The Team: Dr Nicola Cornally (partner lead), Dr Irene Hartigan (co-lead), Dr Serena Fitzgerald (co- investigator), Dr Rónán O’Caoimh (co-investigator), Dr Suzanne Timmons (co-investigator), Dr Catherine Buckley (co-investigator), Dr Siobhan Fox (co- investigator), Dr Tony Foley (co-investigator), Dr Catherine Sweeney (co-investigator). Post-Doctoral Researchers Dr Elaine Meehan, Dr Dominika Lisiecka. Consortium Partners: United Kingdom, Kevin Brazil, Queen’s University Belfast (Consortium lead), Canada, Sharon Kaasalainen, McMaster University Netherlands, Jenny Van Der Steen, Leiden University Medical Centre, Czech Republic, Martin Loucka, Center For Palliative Care. Collaborators: United Kingdom, Karen Harrison- Dening, Dementia UK; Italy, Paola Di Gulio, University Of Turin; Netherlands, Minke Kooistra, Alzheimer Nederland (Dutch Alzheimer’s Society); Canada, Mary Schulz, Alzheimer Society Of Canada; Canada, Sharon Baxter, Canadian Hospice Palliative Care Association; Republic Of Ireland, Karen Charnley, All Ireland Institute Of Hospice And Palliative Care; Czech Republic, Iva Holmerova, Charles University & Alzheimer Europe.

The aim of the mySupport study* is to adapt, implement and evaluate a comfort care booklet to support decision making for family carers in six countries: United Kingdom, Republic of Ireland, Netherlands, Canada, Czech Republic, and Italy. The educational intervention was designed to inform family carers about end-of-life care options for people living with advanced dementia. The All Ireland Institute of Hospice and Palliative Care (AIIHPC) was delighted that Professor Brazil officially launched the mySupport study website at the Palliative Care Research Network Symposium in Dublin, 14 November 2019. AIIHPC worked closely with Dr Irene Hartigan and Dr Nicola Cornally, School of Nursing & Midwifery, UCC (Partner Lead for the Knowledge Exchange and Communication Work Package) in collaboration with the wider research team to develop the website. Visit the website to learn more about the study, the research partners and access research outputs and resources including a mySupport study- Logic Model , Template for Intervention Description and Replication checklist and Newsletter . If you would like to sign-up to the mySupport study newsletter which will be published every four months, please send a request to: info@mysupportstudy.eu . You can also follow the research progress on Twitter @mysupportstudy .

*This research is being funded through the EU Joint Programme – Neurodegenerative Disease Research (JPND)

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