School of Nursing & Midwifery Annual Report 2018

Translating Evidence & Innovation for Health

The Team: Dr Nicola Cornally (partner lead), Dr Irene Hartigan (co-lead), Dr Serena Fitzgerald (co-investigator), Dr Rónán O’Caoimh (co-investigator), Dr Suzanne Timmons (co-investigator), Dr Catherine Buckley (co-investigator), Dr Siobhan Fox (co-investigator), Dr Tony Foley (co- investigator), Dr Catherine Sweeney (co-investigator). PhD student and Post-Doctoral Researcher to be appointed. Consortium Partners: United Kingdom, Kevin Brazil, Queen’s University Belfast (Consortium lead), Canada, Sharon Kaasalainen, McMaster University Netherlands, Jenny Van Der Steen, Leiden University Medical Centre, Czech Republic, Martin Loucka, Center For Palliative Care. Collaborators: United Kingdom, Karen Harrison-Dening, Dementia UK; Italy, Paola Di Gulio, University Of Turin; Netherlands, Minke Kooistra, Alzheimer Nederland (Dutch Alzheimer’s Society); Canada, Mary Schulz, Alzheimer Society Of Canada; Canada, Sharon Baxter, Canadian Hospice Palliative Care Association; Republic Of Ireland, Karen Charnley, All Ireland Institute Of Hospice And Palliative Care; Czech Republic, Iva Holmerova, Charles University & Alzheimer Europe.

Pictured above: Dr Siobhan Fox from the Centre for Gerontology and Rehabilitation, UCC, Dr Serena FitzGerald, Dr Irene Hartigan, Dr Nicola Cornally, School of Nursing and Midwifery, UCC.

Activities developed as part of this project are designed to foster networking and capacity building of future research leaders in Dementia Palliative Care. This cross-population research enhances sustainability of activities beyond the lifetime of the project.

Advance care planning varies internationally and its definition lacks consensus. Legislative frameworks and cultural diversity make it difficult to systematically translate and standardise this type of evidence into practice. Nonetheless, this variation in care delivery and care contexts will enable the exchange of practice and solutions between partner sites. Ultimately, finding the best solution to enhancing end-of-life care decisions making among family members of loved ones with advanced dementia care.

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