School of Nursing & Midwifery Annual Report 2018

Catherine McAuley School of Nursing and Midwifery, UCC

Linking Mental and Physical Health in the Care of Patients with Cystic Fibrosis

The Team: Professor Eileen Savage (PI), Dr Jennifer Cronly, Dr Aine Horgan, Dr Elaine Lehane, Barbara Howe, School of Nursing & Midwifery; Professor Ivan Perry & Dr Tony Fitzgerald School of Public Health; Dr Muireann Ni Chronin Department of Paediatrics Cork University Hospital; Professors Alistair Duff (Leeds University UK, & Kirstin Riekert, John Hopkins University, USA. The output from this study is five peer reviewed publications. Cronly JA, Duff AJ, Riekert KA, Fitzgerald AP, Perry IJ, Lehane EA, Horgan A, Howe BA, Ni Chroinin M, Savage E. (2018). Health-Related Quality of Life in Adolescents and Adults With Cystic Fibrosis: Physical and Mental Health Predictors. Respir Care. 2018 Sep 25. pii: respcare.06356. https://doi.org/10.4187/ respcare.06356 Cronly, J., Duff, A. J., Riekert, K. A., Perry, I. J., Fitzgerald, A. P., Horgan, A., Lehane, E., Howe, B., Ni Chroinin, M., Savage, E. (2018). Online versus paper-based screening for depression and anxiety in adults with cystic fibrosis in Ireland: a cross- sectional exploratory study. BMJ open, 8(1), e019305. doi:10.1136/ bmjopen-2017-019305 Positive mental health among adolescents and adults https://www.sciencedirect.com/science/article/pii/ S0022399918309668?via%3Dihub https://www.sciencedirect.com/science/article/pii/ S0022399918306081 and Anxiety and depression in parent caregivers of children with cystic fibrosis https://link.springer.com/article/10.1007/s10826-019-01349-0 Additional publications are accepted for 2019 and are now available as epub ahead of print. These relate to: Selected References:

The Story: Cystic fibrosis (CF) is a chronic life-shortening illness, although increased survival into adulthood is now expected because of treatment advances. To date, most research has focussed on the most promising treatments to improve the physical aspects of the disease such as lung function and dietary management. There has been less research on the psychological impact of having CF. CF- DAP (Prevalence of Depression and Anxiety in patients with CF and impact on Physical Health and Quality of Life) is a national study completed in 2018. It was jointly funded by the Health Research Board and the Cystic Fibrosis Ireland. Similar studies have been conducted in over 20 countries across Europe and the USA as part of an international collaboration. The study found that symptoms of anxiety and depression increase with age. Depression and anxiety negatively impact on lung function in adult patients and on quality of life in both adult and adolescent patients. They also experienced more hospitalisations over a 12-month period than patients who did not have depression or anxiety. Of those who experience mental health problems, only two thirds seek help. The main impact of this study is that it demonstrates that mental and physical health are interlinked and that mental health assessment/screening needs to become routine practice in the care of patients with CF. This will facilitate early intervention for mental health problems which in turn will contribute to better physical health and quality of life.

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